For Your Prayers

I don't know how many people follow this blog.  I haven't ever checked into it.  I never even really thought about it.  I do know that I have been sent random emails from people far and wide checking on how I am doing, and asking why I haven't updated what is going on.  Let me start by saying that I am grateful for all the support, and follow that with I am sorry that I don't update more often. 

The thing about Myasthenia (and it kind of makes me mad that I capitalized that) is that our lives aren't our own.  We are subject to huge swings of fate.  All it takes is chopping onions and a slip of the knife, a little cut on my finger, to make all the nasty evil antibodies come out and attack not only the possible infection festering in my bloodstream, but also my ability to speak, walk and breathe.  What does one do with that? 

How am I doing?  I am struggling with this answer.  Some days I am fantastic.  Most days you would never know what is going on with me.  Is that because I worry about upsetting those that I care about, so I put on the best face I possibly can?  Do I really hide the symptoms that well?  No. Well, maybe. 

I am so much better than I was before chemo.  I am so grateful for all that medical science has done for me, and in turn, for my family.  One round of chemo was supposed to put me into remission (we hoped and prayed).  The second round of chemo was surely going to put me into remission (we hoped, prayed and swore that it would).  The third round of chemo should absolutely have obliterated the MG. 

Am I better off than I was?  Absolutely.  Would I do it all over again?  Beyond question.  Am I still asking for prayers, despite being able to function far beyond where I was 4 years ago?  Yes, please. 

Thank you all for your thoughts, your prayers, and for caring about our family.