Busy times

First Day of School 2008

Waiting for the bus with Mommy

Thomas waiting for big sister to come home :-)

First Day of Preschool for Thomas!!!

We LOVE Acorn School!!!

I can't believe how long I let this blog go without writing. No wonder I keep getting phone calls asking if I am okay. Yes. I am okay. Thank you all again for your thoughts and prayers, and to those of you who have called. I guess I just got tired of writing. Got tired of thinking about the disease, the treatments- if they are working or not. I took the summer to spend with my wonderful kids and husband. Spent precious times in Wolfeboro with my parents, and down on the cape with Jason's parents. We had lots of fun activities going on when I was up to it- which was a lot. Certainly more capable than I have been at anytime in the last 4 years (actually the last 14 years). It is hard to believe that the best I have been is while I am in the middle of chemotherapy. That thought keeps it all in perspective for me.







We have really just been enjoying it all. Jason and I don't really talk about the MG much. Not that we ever did. As I have said before, regardless of how things are with my health, we pretty much always have just said, "fine, we are fine. Thank you". In reality, we are fine. We have a great marriage, great kids, great family supporting us and excellent attitudes- if I do say so myself. So the myasthenia is still here with us, but it doesn't rule our lives, and I have spent many long hours making sure it doesn't define who I am. There have been many times when I have felt like that is all I am- a sick person- but I am not that, in fact that is probably the smallest part of who I am. Those have been the hardest times for me. Most of the time I am uber positive. When I am not, I get so mad at myself. But hey, I am human after all. There are just so many good things to think about, why would I dwell on the bad stuff?







So to fill everyone in on my health, I did need to go in unexpectedly last week for an unplanned IVIg- but I am not concerned. The previous IVIg was only 30 grams (I had been getting 60g every other week). We were hoping to make it 30 grams once a month, and I made it to 2 and a half weeks. Plus it was a stressful week (happy but stressful) putting our little girl on the bus for the first time and sending little Thomas off to preschool for the first time. So far, this week has been much better. The kids love school, and I have even been able to get back in the gym! I just got home from swimming a half mile- my goal is to make a mile in one hour by next week. Today was half a mile in 25 minutes. I think I can do it!!! No- I know I can do it.





Thank you all, as always for all your support. Your prayers are the biggest reason I am doing as well as I have been. I will be eternally grateful for all the kind thoughts.