Feeling Most Excellent!

My good friend Suzie kept telling me over and over all through the four years of pre-school that once the kids were off to school every day that I would be much better.  Turns out she was right!  I am going with combination of 3 courses of chemo and now the kids being in school.  Regardless of what the reason, I am feeling most excellent (as Bill and Ted would say).  At the end of most days, I am slurring, but that is always very quickly resolved with a glass of wine or two :-) 

I haven't been in for steroids for four weeks as of today, and it was five weeks between treatments last time.  I am still taking the mestion every five hours and it is pretty clear if I ever miss a dose.  LOL  I get all slurry and stumble all over the place!  Crazy disease that makes me look drunk, and then I get to drink wine and I don't look drunk anymore. 

So I am feeling this well, and that is after throwing a crazy Halloween party with over 30 friends and neighbors and dealing with Katherine, who has strep (poor baby) and having a terrible cold myself.  In the past, all it took to throw me into crisis was a cut on my finger.  My body would say, "oh... possible infection!  Lets make tons and tons of antibodies to kill it!"  And off to the ER or infusion center I would go. 

Now I really do kind of feel like superwoman.  I am doing just about anything I want to do (but being careful to take care of myself- most of the time- LOL) and for the most part, I feel really good.  I did have a blip after going on a hike a few weeks ago- but who isn't tired after a hike?  My tired just came out as not being able to talk or walk, oh and a little trouble catching my breath.  But I am fine now.  Worth it for a day in the mountains with some of the people I love most! 

The big news is that there is a new drug out there for MS and Dr. Logan thinks this would work well for me.  It is a steroid, but I can inject it at home... and if it works, I can have my port taken out!!! As of right now, the insurance company has rejected it, but apparently that is always the first outcome with this drug, and we are fighting to get it for me. 

Living with MG has been like living on a roller coaster ride. For me, the key to getting through has been to just live in the moment.  Life is full of high highs and sometimes extremely low lows.  You can't spend all your time getting stuck in those moments.  You just have to endure and make the most of what you have.